I was a bit like one of those David Attenborough elephant seals, flopping around my bed and the floor trying to find some relief. I found some paracetamol - fat lot of good that did me - and continued to flop around until I found 3 hours of peace lying in the position that a Muslim man at prayer might find himself in if he fell asleep mid-worship.
I rang my uncle - my dear sweet uncle - who, because he was a GP once, must forever find himself dealing with frantic, panicking friends and relations like me hoping he can diagnose them down a phone line. After snotting quite a lot down my free.fr landline, I hung up, hoping it was muscular ache that, for some reason, was just nailing me to the floor. Oh yeah, to add insult to injury, I had to do a pregnancy test just to check it wasn't a baby growing in my fallopian tube causing the insane pain. Nope, nothing doing there....
I felt it was pathetic to be so in agony over muscular pain. I was far stronger than that, I thought, before the transplant. The operation and subsequent infections - injections - complications n' 'conflictions' have left me a weaker woman, there is no doubt about that.
So it was almost with glee that I noticed I had a rash on the right side of my back where the pain was. At first I thought it must be that I had a poisonous kidney infection bubbling to grow out of my body. But after googling 'back pain and rash three days later' I diagnosed myself with the old lady's plague - Shingles.
My journey down to the hospital both yesterday for my scans/xrays and today to finally be diagnosed, I felt like the people sitting around me on the metro must think I had muscular dystrophy of some sort as I writhed around out of control. Makes sense, in fact, that they give you the same drugs that they hand out for epileptic fits. Shingles do give seizures as it turns out.
Anyway, another infection to add to the list. I'm really racking them up.
They say that every transplant patient's journey is different from the next. And the first person who said that to me said her journey had been a breeze. I am fast getting the feeling that mine is a bloody nightmare. Perhaps I should shut my mouth and let others, like me when I first heard that line, believe the transplant's a one stop shop for a permanent fix. Not that I'm saying I'm not eternally grateful, and that this life is a gazillion bambillion times better than dialysis. I guess I'm just allowing myself a little grumble. That's allowed isn't it?
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Hello lovely - Just a couple of things - I mentioned your brilliant blog to the boyfriend and the first thing he said was 'Jonah Lomu' - It seems celebrities do continue important issues validating my previous job somewhat. Seems he is in a similar position - http://www.net-a-porter.com/product/178659
ReplyDeleteAlso I feel for you on the shingles, I had it three years ago and don't even remember being particularly run down at the time?!
Couldn't agree with you more - all organs should be donated unless someone specifically opted out. Love to you x
no idea how that link came up instead...been bridesmaid shopping earlier apologies!
ReplyDeleteHere it is:
http://www.bbc.co.uk/sport/0/rugby-union/17009483
ha ha! Love the netaporter link! Think the dress is lovely!
ReplyDeleteI've heard of Jonah Lomu. He had a transplant back in 2004 and they put the kidney into his back rather than his stomach so that it would be protected in his rugby tackles. Amazing he can just stand up and take such a beating without being terrified of what it must be doing to his insides. Massively inspiring really. xx